First of all I don't remember if I explained the spelling of his name in my first post. I was all set to spell it Aiden, but Chris said no I want it spelled Aidan because that is the Gaelic spelling and that was just too cute to listen to him say.
I spent a lot of time with Aid up in the NICU. He has some blood clotting issues and some other things. They have given him a few blood transfusion to replace the blood that they are taking out for getting samples. They are also giving him platelets and honestly I have no idea why.
They are very very impressed with his activity because he's constantly moving his arms or kicking his legs. This morning I got to see him open his eyes for the first time and they are the most beautiful eyes I've ever seen. I have no idea what color they are, but they are amazing. We also got to see his peach fuzz hair, but have no idea what color it is. He is very bruised from delivery and the light therapy that he's getting make it nearly impossible to tell the color. All I know is that he is the most beautiful baby I've ever seen. He knows my voice and my touch because his numbers improve a lot when he's holding my fingers. He also starts to kick more when he hears daddy's voice.
Now onto the problem. It's a good thing I have to type it and not say it because you would have no idea what I'm mumbling. Aidan has a significant pool of blood on the left side of his brain that is pushing some tissue to the right side of the brain. Tonight's goal is to make it to the next hour and then tomorrow morning they will take a CT Scan to know the full extent of it and what their course of action will be. We have the head of the NICU on our case and one of the best neonatal neurosurgeons working on Aidan. They can't even try to figure out how severe this is due to his amazing movement. Chris and I haven't really stopped crying since we had the meeting to discuss this and thankfully they allowed our parents to be in the room. The good news is that the pool looked to be the same size this afternoon as it was this morning so it isn't getting larger.
I'm sooooo blown away by the amount of love and support that we've received the past day and a half. We have more people praying for our little guy than I could ever imagine. If you don't mind, could you spare a few more prayers for him for the next 24 hours. Tonight is a very critical one and we need all the prayers we can get. Shortly we'll be making our way upstairs for bed time story.
Maggs
1 day postpartum
More on me in the next post, but I wanted to get all of his information written down before my pain meds make me forget again.
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I'm sorry that they found that he has been bleeding, but I'm so relieved to hear that it doesn't look like it's getting bigger. I'm glad that he's moving a lot (I had been hoping that it was a good sign) and that he recognizes your voices! That's wonderful news. DH and I will keep up the thoughts and prayers (and tears from me too though it confuses DH). I like the story behind his name. I'll try to spell it right from now on.
ReplyDeleteAidan truly sounds like a fighter. Sending lots of prayers!
ReplyDeleteMaggie - I'm so sorry. I'm praying for your beautiful son, you & your husband, and your whole family.
ReplyDeleteThe fact that he knows your voice and touch melted my heart and brought me to tears.
I'm so sorry. I wish there was something more I could do to help.
I am so sorry Maggie. Can not even imagine.
ReplyDeleteLove you both.
Janet