Wednesday, April 14, 2010

Aidan’s last day-Our final moments

I’m finally ready to finish this. Please have tissues with you.

IMG_2206 The view outside of Aidan’s room. Chris wanted to have a picture of the snow so we could remember what the day was like.

After we got done holding Aidan we had my parent’s leave the room. I forgot to mention that when I was holding Aidan, Dr. B came in to see us. She was crying with us and told us how beautiful he is. I asked Ingrid if I could do one more mouth care and she said that we could do one more round of our entire hands on time.  We changed his diaper, which had a good amount of pee in it, still not up to his old numbers.  I did his mouth care and it was so bitter sweet.  He barely opened his mouth at first, but then once I got the swab in his mouth he opened wider. I will never forget being able to give him that.  I read him Goodnight Moon and Chris read him a Valentines book. Ingrid and I got prints of his hands and feet.

IMG_2202  IMG_2205

The foot and hand that are a little smudged because of the IV and the machine that was wrapped around his foot. I love those feet!

We made our promises to Aidan and told him how much we love him and that we would never stop loving him. We held his hand, we held his head and we cried. Chris asked me if I was ready to have the dr come in. I didn’t want to answer him because I didn’t want to be the one to make the decision. I never wanted the dr to come in, but we had to do what was best for Aidan. I knew it was time so I cried and shook my head yes. 

We had been told that we would sit on the couch and they would bring him to us. I sat on the couch just crying and crying. I wanted so bad to scream STOP, WAIT, I’M NOT READY!!!! but I couldn’t. I mean I physically couldn’t talk. It was like I was just watching a movie, it didn’t feel real. I texted Michelle and said OMG, it’s time.  Ingrid then motioned for me to come sit in the rocking chair. I sat down and she handed me Aidan.  He started to open his eyes for the first time in a couple of days. I started to close his eyes, but instead had Chris take a picture of Aidan with his eyes open.  It felt like they were opened so wide, but looking at the pictures he barely had them open.  Aidan took a few breaths and then I felt him take his last breath.  I kept telling Aidan over and over how sorry I was and that I loved him so much.  Ingrid came over and told us that he was gone. We just cried and cried. I can’t believe my baby is gone. I kissed him and I just kept stroking him. His muscles did twitch a couple of times which took me by surprise. When he did that I hoped maybe it was a mistake and he was going to stay with us. Then I remembered what I’ve heard about chickens after their heads are cut off, that their bodies can still move. Yes, that’s what I thought about while I was holding Aidan. :-) I just wanted to sit in that recliner and hold Aidan forever.

My damn back was still killing me and so I had to get up so I gave Aidan to Chris to hold on the couch. When he was holding him I said “See Aidan that’s snow.” His blue hat was falling off and I kept trying to put it on him because I didn’t want his head to get cold.  I know, I know when you pass your body gets cold, but I was just trying to protect my baby. I got pictures of Chris holding Aidan and Joni, the grief counselor came in to get pictures for us.  I really appreciated all the pictures that Jodi was taking for us. We have pictures of us holding him, him holding our rings, his feet and hands. I also got to give him a facial to get the tape residue off. He has the softest blonde fuzzy cheeks and chin. I loved being able to give him a bath.  I changed his diaper again and then got him dressed.  I wanted to be touching him the whole time, but I hadn’t eaten all day and it was past 3 pm. I was about to pass out so Ingrid got me some food. We have pictures of me trying to put my hand back on him in between bites. Those pictures kind of creeped me out, but I’m so glad we have them. I couldn’t stop kissing Aidan and rubbing his head. I also kissed his hands and feet too. They were getting so cold. It’s amazing how fast a tiny body could get cold. I just kept saying how cold he was and that I wanted to warm him up.

Chris had already packed up all of Aidan’s belongings and Ingrid gave us almost everything out of the drawer under his crib. I wish we would have grabbed the Aquaphor and the thermometer. After Joni was done taking the pictures we knew it was time to go be with our families. It was getting close to 4:44, the time of his birth and we decided to be with our families at that time. Little did we know that down the hall, Uncle Adam told everyone that we would be out at 4:44. Ingrid had left the room, but I couldn’t leave Aidan by himself so we waited until she came back.  I very very very very reluctantly left my baby boy laying in the crib. We calmly walked down the hallway of the NICU holding hands. We knew that we had to walk through the doorway together and we wanted to be holding hands.  Chris went to his family to cry and I went to mine. I couldn’t cry though. I was numb and happy at the same time. I was happy that Aidan was with God, couldn’t be harmed by the bleed anymore and most importantly that he is and always will be my baby. I smiled as I looked at the pictures that I now call my security blanket pictures. Our Pastor, Dick was still there, and I’m so glad he was. I don’t know if he talked/helped our families, but I’m glad he was there in case they needed to talk to someone.  He talked about our next steps, but I was so numb that I didn’t even hear him.  Ingrid came out to give us a folder for grieving parents and to get the binder of funeral information. It dawned on me that I had no idea what time Aidan passed. She told us that he passed at 3:05pm.

Once we were done going over everything we all went our separate ways. I still can’t believe my baby is gone. I miss Aidan so much, but I’m so glad we had the 8 days. I can’t believe that we created such a perfect little boy and how handsome he is! Aidan is our first born, the little boy who stole our hearts in an instant, and the love of our lives!

I love you Aidan Christopher

Maggs

It's like they can read my mind!

Chris and I went to visit Aidan on Saturday. We needed to pick up the dead flowers from Easter and well to visit.  I was saying to him that I wanted to get a pin wheel (is it spin wheel?) and some new flowers.  I haven't looked very hard for for pin wheel, but when we got to my in-laws for Sunday dinner they had two in their front yard. I meant to ask Nancy where she got them but forgot.  Anyway, I went to visit Aidan today on my lunch and there was a pin wheel and new flowers.  I started bawling. We're not very vocal with our emotions (with my in-laws) and so I have no idea how they are doing in their grieving process. Seeing something new at Aidan's grave every time we go out lets me know how much they think about him and how much they miss him. That's what made me cry.  I don't have to hear how much they loved him, I can see it when I visit him.

I love you Aidan Christopher and so do your grandparents!

Maggs

Saturday, April 10, 2010

Blood work

Back on St. Patrick’s day I had 80 bazillion vials of blood drawn. Okay it was actually only 20, but that’s still a lot.  Dr. B wanted to check for everything under the sun to find out if anything was wrong with me to cause my cord to fail.  I got a call from Dr. B 2 weeks later with the results.  I don’t have any blood clotting disorders and almost everything came back normal. The autoimmune disease test came back positive.  I have an appointment with a rheumatologist on May 3rd to give more blood get more testing done.

Speaking of blood, I asked Dr. B when I can donated blood again. She told me I can donate in June and then not again because we’ll be actively trying to conceive again at some point. She said that she was almost in tears because I’m still trying to do things for others during all of this. I have to though, I want to give back for all the help,love and support that we got with Aidan. After we get done with the March for Babies I plan on figuring out how to organize a blood drive. Aidan was given blood and platelets so I want to help replenish the blood bank.

I love you Aidan Christopher!

Maggs

Final autopsy report

Dr. B said that we didn’t learn anything new from it. Again, that wasn’t the point of getting the autopsy done. I wanted it done so the doctor’s could possible find a way to prevent the bleeding in the future. Dr. B used a big word that starts with an N that means that he had dead tissue in his brain.  I’m assuming that it means it died before he did because…well…wouldn’t it all be dead after he passed? Anyway, I was going to google that word so I could sound smart on here. The first search result came up as how to perform infant autopsy.  Chris made me put the lap top away because he knows me and I totally would have clicked on the link.  My mom knows what the word is so hopefully she’ll make a comment on here so I can edit the post. :-) Thanks Stephanie and mom. The word is Necrosis

ETA: I forgot that she did say that there were no abnormalities with his chromosomes.  She did then say that since Aidan is such a cutie that we know all of our babies will be cute. :-)

I don’t know if I’ve said this before, but I love Dr. B! She is huge in my support system and it’s rare to find that in a doctor. She checked on me and wanted to find out how I’m doing emotionally. I have to see a specialist because of one of my test results came back positive and Dr. B said that she’ll give me a call with the results to explain how it may affect future pregnancies.
I love you Aidan Christopher!
Maggs

Thursday, April 8, 2010

A challenge

Right now we’re the # 1 team in Central Indiana for the March for Babies.  My first goal for the team was $1,000. We met that a few weeks into the fund-raising.  I set the next goal for $2,500 and we passed that this week.  We have 17 days left until the March and I would like to challenge everyone that reads the blog to help us raise $3,000. There is no prize as the end except to know that you are helping pre-mature babies.  No amount is too small and any amount is greatly appreciated. 

To donate click on the following link.

http://www.marchforbabies.org/team/t1375275

Thank you so much for helping other pre-mature babies and for helping me keep my son’s name alive.

I love you Aidan Christopher!

Maggie

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Monday, April 5, 2010

What happened-Aidan’s last day

I’m finally up for writing this. This one will be mostly pictures. I’ll continue the rest of the story on a different day. I can only emotionally handle so much.

I woke up around 8am on Tuesday and I called the NICU to check on Aidan. He made it through the night, but wasn’t doing so good. He went from wetting the bed and filling diapers to barely peeing at all. I told them that we would be there sometime in the morning.  It was Chris’s birthday and he is not a morning person so I let him sleep in a little bit.  I pumped before we left so that I wouldn’t have to take care of getting the milk to the bank. My mom had called our pastor to have him meet us at the hospital. We told him that we’d be there around 11, but like usual we were late. It didn’t help that we had another huge snow storm and the roads sucked. We got a big bag so we could take home all of Aidan’s things because I didn’t want to bring his items home in a clear patient bag. 

We got to the hospital around 11:30 and that was about the time my parent’s arrived. While Chris parked the card my mom and I went to the gift shop to buy Chris a Happy Birthday card from Aidan. We went upstairs and met Dick, our Pastor, in the lobby of the NICU.  Chris and I took Dick back to meet Aidan. He prayed for Aidan and he prayed for us.  I wasn’t sure about getting Aidan baptized so I asked Dick. He told us that it was up to us and that we couldn’t do anything “wrong.” We decided to have Aidan baptized so Dick got things set up.  I’m so glad we made that decision. IMG_2163 I was really glad that Dick could make it because I wanted him there to give us more strength, but we had never been through this before and we didn’t know what to do.  It was also great for him to be there for our families who were waiting in the lobby.  He stayed with us, in the room, while everyone said goodbye.

When we walked into the room we noticed a couple of scrap book pages sitting on the shelves. Natalie had made the pages for us and I don’t think I’ll ever be able to express how grateful I am for those pictures.  By this time both families were in the lobby ready to say their last goodbyes.

The nurses had the top of Aidan’s isolate up so that we could say our goodbyes easier by being able to see him and touch him. Even though I knew his time was short I was still very strict to make sure everyone used hand sanitizer and only touched him. We were told that rubbing hurt his skin. I did not want him in pain.IMG_2164 (Aunt Katie)

IMG_2166 (Momo, Aunt Katie and me)

IMG_2172 (Grandma Nancy and Uncle Adam)

I have a fantastic picture of Aidan with Uncle Adam, but it’s too close up to Aidan’s face and I’m still not comfortable posting that yet. Sorry.

 IMG_2174 (Grandpa Larry)

IMG_2176 (Frampa)

It was time for Chris and I to hold Aidan one last time. Since his parent’s were in the room with us the night before while we held him, I wanted mine in the room this time.

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I’m so in love with that boy and having him in my arms was the perfect place for him.  I sleep with that quilt that my mom made every night. It touched my baby.

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Not such a great family picture, but that doesn’t matter. It was our last family picture.

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My back was hurting so bad and I couldn’t get readjust to get in a comfortable position so I had to let him go. I almost collapsed as I ran to my dad’s arms after the nurses had Aidan.

IMG_2184 My heart melts looking at my husband holding his son.

IMG_2189

I’ll continue this later.

I love you Aidan Christopher!

Maggs

Sunday, April 4, 2010

Happy Easter

Dear Aidan,

Hi baby boy. Today is Easter and you get to spend it with the star of the show! Mommy, daddy and momo are going to church today and we're going to celebrate Easter and we're going to celebrate YOU! I wish you were still in the NICU because I would have decorated your crib with eggs and bunnies. I would have told you all about Easter and we would have had lots of story time.  Momo made you an Easter basket and it's very cute. I told her that your favorite candy is Cadbury creme eggs.  I'm not sure why, but mommy has been eating a lot of those lately. After we get done with church we're going to come visit you. I'm glad that I have a place to go and visit you! I promise that we'll always come to visit.

I love you so much Aidan Christopher! Have a great Easter baby

Love you,
Mommy